The British Columbia First Nations’ Data Governance Initiative was established under leadership of the Ktunaxa Nation as they came to share common issues with other First Nations, specifically related to informing decision-making and guiding planning and investment strategies. Scarcity and appropriateness of data were recognized as significant barriers to successful self-government.
The Initiative is one of a number of agreements and planning documents that describe a comprehensive and ambitious provincial mandate and agenda in First Nations’ health, social determinants, health information governance, and health data information sharing and system transformation.
The signing of the 2005 Transformative Change Accord by the First Nations Leadership Council, Province of British Columbia, and the Government of Canada signaled the beginning of a new relationship between the tripartite partners. The 2010 British Columbia Tripartite Data Quality and Sharing Agreement promoted a commitment to ensure that federally and provincially held information on First Nations is shared. The British Columbia First Nations’ Data Governance Initiative followed as a practical approach, led by and for BC First Nations, to implement some of the political commitments outlined in these documents. The Initiative also supports the October 2013 management and transfer of health services from Health Canada to British Columbia First Nations.
Moving Towards a National Approach
First Nations across Canada are focusing on data governance. Alberta has established a Regional First Nations Information Governance Centre which is primarily funded by Health Canada. Quebec First Nations are working collaboratively to build data governance and information management capacity, working with their government partners to address their unique needs. Other regions have also organized themselves to accommodate their interests; in BC there is the BC First Nations Data Governance Initiative. What is needed is a National Data Governance Strategy that aligns these regional approaches with broader political and reporting reform initiatives across governments.
Concept Paper and Briefing Note
British Columbia First Nations' Data Governance Initiative Timeline
Key items on the above timeline include:
March 17, 2005: Leadership Accord
July 15, 2005: First Nations Health Blueprint for BC
November 25, 2005: Transformative Change Accord (PDF)
November 26, 2006: Bilateral First Nations Health Plan (PDF)
November 27, 2006: Tripartite MoU (PDF)
July 11, 2007: Tripartite First Nations Health Plan (PDF)
April 16, 2010: First Nations in BC Tripartite Data Quality Sharing Agreement (PDF)
July 26, 2010: Tripartite Basis for a Framework Agreement on Health Governance (PDF)
May 26, 2011: GW IV - Resolution on Consensus Paper (PDF)
October 23, 2011: Tripartite Framework Agreement on First Nation Health Governance (PDF)
January 2012: GW V - Resolution 2012:01 (PDF)
December 17, 2012: Health Partnership Accord signing (PDF)
March 2014: Data Governance Framework signed (PDF)
Health Canada Documents
October 21, 2013
October 19, 2013